You read the title of this blog post right. Our son, Micah, is facing in the coming weeks (or months) a re-transplant.
The back story, in case you're not familiar, is that Micah was born with a rare liver disease that required him at 7 months of age to undergo a liver transplant. In the first two years that followed, Micah had several complications, not limited to, bile duct blockages, blood clots, and the cancer of transplant patients (PTLD).
At that time there were complications that occurred that we knew would one day have an impact that would have to be addressed. Over the last two years Micah has experienced further issues as a result. Primarily, the clotting of his portal vein years ago has now lead to issues with his lungs, spleen, and more.
In the words of the transplant surgeon, the only "medical option we have to address these issues is a re-transplant."
On Friday of last week we finished all our tests and labs. This week Micah is to be presented to the team at Duke for approval for a transplant at Duke. Insurance will then be contacted for approval. Then, probably after our fifth son arrives (any day now), Micah will be listed on the UNOS Donor Recipient list. From there, we will wait for what could be days, weeks, or months (but hopefully not years).
This blog actually began as a result of Micah's first transplant. Therefore, I am sure that I will be posting here along the way. You can sign up to follow by email, receiving notification when there is any new post, by using the Follow By Email function to the right.
We have been blessed from the very beginning of Micah's life with such love, support, encouragement, and assistance. Most of all, we have seen God's power displayed and largely a result of your prayers.
Again, we simply ask for you to pray for Micah, his brothers, his parents, and his family as we prepare for the days to come. Even in this, we know and we pray that God will be glorified.
The back story, in case you're not familiar, is that Micah was born with a rare liver disease that required him at 7 months of age to undergo a liver transplant. In the first two years that followed, Micah had several complications, not limited to, bile duct blockages, blood clots, and the cancer of transplant patients (PTLD).
At that time there were complications that occurred that we knew would one day have an impact that would have to be addressed. Over the last two years Micah has experienced further issues as a result. Primarily, the clotting of his portal vein years ago has now lead to issues with his lungs, spleen, and more.
In the words of the transplant surgeon, the only "medical option we have to address these issues is a re-transplant."
On Friday of last week we finished all our tests and labs. This week Micah is to be presented to the team at Duke for approval for a transplant at Duke. Insurance will then be contacted for approval. Then, probably after our fifth son arrives (any day now), Micah will be listed on the UNOS Donor Recipient list. From there, we will wait for what could be days, weeks, or months (but hopefully not years).
This blog actually began as a result of Micah's first transplant. Therefore, I am sure that I will be posting here along the way. You can sign up to follow by email, receiving notification when there is any new post, by using the Follow By Email function to the right.
We have been blessed from the very beginning of Micah's life with such love, support, encouragement, and assistance. Most of all, we have seen God's power displayed and largely a result of your prayers.
Again, we simply ask for you to pray for Micah, his brothers, his parents, and his family as we prepare for the days to come. Even in this, we know and we pray that God will be glorified.
5 comments:
Justin and Sarah- We are praying for your sweet family. We can't even begin to imagine what your "parent hearts" are going through at this time, especially with a new little one due soon! We have been awed again and again over the years of God working in the life of sweet Micah, and we know God will continue to use him, and your entire family for His glory. We love you!
We will definitely be praying with and for you. May the Lord grant grace, strength, and patience as you face this next season.
I am sorry you have to continue down this road. But we all know God has a plan, and we just can't see the end of it yet. You all are in our prayers.
Your family are in our and our church's continued prayers.
Praying first for healing for Micah and wisdom for the doctors, for provision of every need, and for peace and comfort from the Lord to surround your family throughout this process. You will continue to be in my prayers.
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