You read the title of this blog post right. Our son, Micah, is facing in the coming weeks (or months) a re-transplant.
The back story, in case you're not familiar, is that Micah was born with a rare liver disease that required him at 7 months of age to undergo a liver transplant. In the first two years that followed, Micah had several complications, not limited to, bile duct blockages, blood clots, and the cancer of transplant patients (PTLD).
At that time there were complications that occurred that we knew would one day have an impact that would have to be addressed. Over the last two years Micah has experienced further issues as a result. Primarily, the clotting of his portal vein years ago has now lead to issues with his lungs, spleen, and more.
In the words of the transplant surgeon, the only "medical option we have to address these issues is a re-transplant."
On Friday of last week we finished all our tests and labs. This week Micah is to be presented to the team at Duke for approval for a transplant at Duke. Insurance will then be contacted for approval. Then, probably after our fifth son arrives (any day now), Micah will be listed on the UNOS Donor Recipient list. From there, we will wait for what could be days, weeks, or months (but hopefully not years).
This blog actually began as a result of Micah's first transplant. Therefore, I am sure that I will be posting here along the way. You can sign up to follow by email, receiving notification when there is any new post, by using the Follow By Email function to the right.
We have been blessed from the very beginning of Micah's life with such love, support, encouragement, and assistance. Most of all, we have seen God's power displayed and largely a result of your prayers.
Again, we simply ask for you to pray for Micah, his brothers, his parents, and his family as we prepare for the days to come. Even in this, we know and we pray that God will be glorified.
The back story, in case you're not familiar, is that Micah was born with a rare liver disease that required him at 7 months of age to undergo a liver transplant. In the first two years that followed, Micah had several complications, not limited to, bile duct blockages, blood clots, and the cancer of transplant patients (PTLD).
At that time there were complications that occurred that we knew would one day have an impact that would have to be addressed. Over the last two years Micah has experienced further issues as a result. Primarily, the clotting of his portal vein years ago has now lead to issues with his lungs, spleen, and more.
In the words of the transplant surgeon, the only "medical option we have to address these issues is a re-transplant."
On Friday of last week we finished all our tests and labs. This week Micah is to be presented to the team at Duke for approval for a transplant at Duke. Insurance will then be contacted for approval. Then, probably after our fifth son arrives (any day now), Micah will be listed on the UNOS Donor Recipient list. From there, we will wait for what could be days, weeks, or months (but hopefully not years).
This blog actually began as a result of Micah's first transplant. Therefore, I am sure that I will be posting here along the way. You can sign up to follow by email, receiving notification when there is any new post, by using the Follow By Email function to the right.
We have been blessed from the very beginning of Micah's life with such love, support, encouragement, and assistance. Most of all, we have seen God's power displayed and largely a result of your prayers.
Again, we simply ask for you to pray for Micah, his brothers, his parents, and his family as we prepare for the days to come. Even in this, we know and we pray that God will be glorified.
