Wednesday, June 18, 2014

Micah Update: We Wait

Three months ago Micah was listed on the liver transplant list to receive his second liver transplant of his short 7 year life. We continue to wait. There's no way to know when the surgery will take place. And certainly the events that precipitate the availability of a liver are difficult to think upon.

Micah continues to do well most days. He continues to face more regular fatigue. But he completed baseball season alongside of his brothers, Isaac and Ethan. They are all three great at helping care for and play with the two little brothers, Malachi and Titus.

He continues to have surgery on his mind everyday. There's rarely a day that goes by that something doesn't trigger a conversation or some statement related to the wait or the surgery to come. With visiting grandparents this week, it simply came up when he told me they would stay longer if he had his transplant.

Please continue to pray for patience in the waiting, strength and comfort for Micah's body and heart, and trust in the perfect will and timing of God.

I would additionally ask specific prayer for Isaac and Ethan. They have lived these circumstances related to Micah's health for the majority of their life. They don't really know a time when it wasn't part of our journey, our story, and God's work in and through us. However, this time they face the future and the events to come with greater understanding. They know the risk for Micah and the cost to another child and family. Isaac shed great tears the other night as he verbalized his fear, sadness, and struggle with both all of this.

We are grateful for your continued prayers for us, our family, Micah specifically, and for God to accomplish, as we have always hoped, what will ultimately bring him the greatest glory by displaying and declaring the good news through this.