"Behold, God is my helper; The Lord is the sustainer of my soul" (Psalm 54:4). A timely and great reminder for all of God's people. For the Lord is our helper; He is the one who sustains us from day to day and moment to moment.
Yesterday's visit to Duke went well. Micah saw Dr. Berman again and had blood drawn for labs again. As of today, Micah should be listed on the national transplant list (although we are waiting for the phone call to officially let us know). According to his labs yesterday, his PELD score has increased from 27 to 29. Again, this underscores the fact that Micah is declining in health due to liver malfunction. Furthermore, his sodium level was low. This is a concern, although not an emergency. Today he will start a sodium supplement to see if this might raise the level.
Based on what the liver transplant nurse shared with us, Micah will likely be close to the top, if not at the top, whenever he is listed on the transplant recipient list. And we were informed that we should always have a cell phone with us and be prepared for the possibility of transplant at any moment or day.
On the other hand, I met with Dr. Alister Smith, the hepatologist, for the first time yesterday. A general work-up and exam followed by a trip to the phlebotomist (someone who draws blood; just trying to utilize my new medical terminology - Ha! Ha!). I never knew I had so much blood to give. After 15 viles, the phlebotomist finally remove the needle. We'll wait to hear whether there are any concerns or red flags from the blood tests before proceeding with an MRI, chest x-ray and EKG. The process for being a living donor is underway.
Please continue to pray. Micah is still Micah. But he certainly is showing more decline. Pray for Sarah. Yesterday, I think, was hard. News that his PELD score went up two points coupled with the thought of having both your husband and one of your sons undergo a major operation were difficult. Pray for Isaac and Ethan. We certainly want them to have a sense of security and love, in no way feeling overlooked during this time.
But most of all, pray that God will be glorified. Even last night as I placed Micah in bed, I asked the Lord to use Micah's life to live up to his name. Micah means "who is God" or "who is like God." It may be better interpreted as a statement to proclaim "There is no one like our God." So I prayed again for God to be glorified and use his life, the one whose name means no one is like our God, to simply proclaim that truth.
May each of you who read this seek to live for the glory of God...knowing that He created you in His image and for His glory. I pray the little things of this life would not blind you nor distract you from seeing the BIG picture. We are hear to be Son reflectors. Thank you for your prayers.
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